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Rett: There is Hope

The story behind Rett Syndrome is complicated. It involves a devastating genetic affliction that starts with young girls and includes incredible family dynamics, groundbreaking treatment, care and science. The film focuses on three Rett girls and their families, the Rett Syndrome Research Trust’s efforts to find a cure and the optimism surrounding treatments and forward thinking scientific breakthroughs.

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The Song – Raising A Hand

Performed Live by Kevin Black Song Written and Sung by Kevin Black. See the complete story concerning this song in our news section.  https://youtu.be/Voa5f7jpZvc?si=9fAeo0wCUEfyV416

IRSF and CureRett

IRSF and CureRett have come together to share a message of hope and strength this holiday season with everyone in our Rett syndrome community, especially

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