Finding a Cure for Rett Syndrome
The research taking place at Baylor College in Houston Texas may hold the keys to finding a cure for not only Rett Syndrome and MECP2
Kevin Black penned this song & produced the video with the same name to help raise awareness for the dreadful disorder that took the life of his daughter Cortney.
The song is available for purchase on all music platforms with a portion of every purchase going to Rett research.
Rett syndrome (RTT) is a neurological disorder, found primarily in females. The girls progress normally up until about 12 to 18 months of age when the characteristics of Rett start to reveal themselves. All the social skills and motor skills they have obtained slowly cease to progress, starting a process of regression to what is the equivalent of living the rest of their life as an infant. They lose the use of their hands, and the ability to speak, and most are bound to a wheelchair. Parents and siblings become 24-hour caregivers, changing their lives forever as well…
Kevin Black
Kevin Black penned this song & produced the video with the same name to help raise awareness for the dreadful disorder that took the life of his daughter Cortney.
The song is available for purchase on all music platforms with a portion of every purchase going to Rett research.
The research taking place at Baylor College in Houston Texas may hold the keys to finding a cure for not only Rett Syndrome and MECP2
Clint Black raises his voice for a cause By Rebecca Angel Baer, CNN With a twinkle in his eye and a gentle smile under the
Performed Live by Kevin Black Song Written and Sung by Kevin Black. See the complete story concerning this song in our news section. https://youtu.be/Voa5f7jpZvc?si=9fAeo0wCUEfyV416
The story behind Rett Syndrome is complicated. It involves a devastating genetic affliction that starts with young girls and includes incredible family dynamics, groundbreaking treatment,
PSA video by Roger Earl, the founder of the rock band Foghat . Roger has a niece with Rett Syndrome and has agreed to come