Rett syndrome (RTT) is a neurological disorder, found primarily in females. The girls progress normally up until about 12 to 18 months of age when the characteristics of Rett start to reveal themselves. All the social skills and motor skills they have obtained slowly cease to progress, starting a process of regression to what is the equivalent of living the rest of their life as an infant. They lose the use of their hands, and the ability to speak, and most are bound to a wheelchair. Parents and siblings become 24-hour caregivers, changing their lives forever as well… Kevin Black
Rett syndrome (RTT) is a neurological disorder, found primarily in females. The girls progress normally up until about 12 to 18 months of age when the characteristics of Rett start to reveal themselves. All the social skills and motor skills they have obtained slowly cease to progress, starting a process of regression to what is the equivalent of living the rest of their life as an infant. They lose the use of their hands, and the ability to speak, and most are bound to a wheelchair. Parents and siblings become 24-hour caregivers, changing their lives forever as well…
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The longest march started with a single step!
Kevin Black penned this song & produced the video with the same name to help raise awareness for the dreadful disorder that took the life of his daughter Cortney.
The song is available for purchase on all music platforms with a portion of every purchase going to Rett research.
We have created a list of worthy recipients that will receive a quantity of books based on nine sponsorship levels. Choose a sponsorship level from 1 book up to 500 books, and then you can choose from the list, your desired recipients.
We will then distribute the copies around the nation and in some cases when it to comes to our military, overseas, with a note identifying you as the sponsor.
Example: Sponsor 50 books, send in a check for $2,500, or simply make a donation here and the books will then be mailed out in a timely manner to the desired recipients.
RAISING A HAND will select from these recipient types:
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