Performed Live by Kevin Black
Song Written and Sung by Kevin Black.
See the complete story concerning this song in our news section.
https://youtu.be/Voa5f7jpZvc?si=9fAeo0wCUEfyV416
Kevin Black penned this song & produced the video with the same name to help raise awareness for the dreadful disorder that took the life of his daughter Cortney.
The song is available for purchase on all music platforms with a portion of every purchase going to Rett research.
Rett syndrome (RTT) is a neurological disorder, found primarily in females. The girls progress normally up until about 12 to 18 months of age when the characteristics of Rett start to reveal themselves. All the social skills and motor skills they have obtained slowly cease to progress, starting a process of regression to what is the equivalent of living the rest of their life as an infant. They lose the use of their hands, and the ability to speak, and most are bound to a wheelchair. Parents and siblings become 24-hour caregivers, changing their lives forever as well…
Kevin Black
Kevin Black penned this song & produced the video with the same name to help raise awareness for the dreadful disorder that took the life of his daughter Cortney.
The song is available for purchase on all music platforms with a portion of every purchase going to Rett research.
Song Written and Sung by Kevin Black.
See the complete story concerning this song in our news section.
https://youtu.be/Voa5f7jpZvc?si=9fAeo0wCUEfyV416
Sara Clements Wright, daughter of Dave Clements supports her Dad and Kevin Black’s fight against Rett syndrome in this moving video.
IRSF and CureRett have come together to share a message of hope and strength this holiday season with everyone in our Rett syndrome community, especially
By Maggie Gutierrez / Art Talk A camera and a request for an autograph from well-known and widely published area photographer Dave Clements at a
PSA video by Roger Earl, the founder of the rock band Foghat . Roger has a niece with Rett Syndrome and has agreed to come
Raising a Hand is a nonprofit organization that has created a photography book to help fund the research needed to find a cure for Rett