The Black Family Tragedy
Clint Black lost his 16-year-old niece to Rett syndrome, a neurodevelopmental disorder that almost only affects girls. In a one-on-one interview with Dr. Travis, Clint
Kevin Black penned this song & produced the video with the same name to help raise awareness for the dreadful disorder that took the life of his daughter Cortney.
The song is available for purchase on all music platforms with a portion of every purchase going to Rett research.
Rett syndrome (RTT) is a neurological disorder, found primarily in females. The girls progress normally up until about 12 to 18 months of age when the characteristics of Rett start to reveal themselves. All the social skills and motor skills they have obtained slowly cease to progress, starting a process of regression to what is the equivalent of living the rest of their life as an infant. They lose the use of their hands, and the ability to speak, and most are bound to a wheelchair. Parents and siblings become 24-hour caregivers, changing their lives forever as well…
Kevin Black
Kevin Black penned this song & produced the video with the same name to help raise awareness for the dreadful disorder that took the life of his daughter Cortney.
The song is available for purchase on all music platforms with a portion of every purchase going to Rett research.
Clint Black lost his 16-year-old niece to Rett syndrome, a neurodevelopmental disorder that almost only affects girls. In a one-on-one interview with Dr. Travis, Clint
Hands in the air: Photographer snaps stars for a cause By Ken Hoffman October 14, 2016 Dave Clements worked in human resources for 35 years at
Performed Live by Kevin Black Song Written and Sung by Kevin Black. See the complete story concerning this song in our news section. https://youtu.be/Voa5f7jpZvc?si=9fAeo0wCUEfyV416
IRSF and CureRett have come together to share a message of hope and strength this holiday season with everyone in our Rett syndrome community, especially
IRSF’s Jennifer Endres interviews Dr. Walter Kaufmann regarding the recent update from the IGF-1 Clinical Trial.