
Dave’s Video
Raising A Hand’s Dave Clements’ personal plea to encourage others to help him and singer-songwriter Kevin Black help fund a cure for Rett syndrome.
Kevin Black penned this song & produced the video with the same name to help raise awareness for the dreadful disorder that took the life of his daughter Cortney.
The song is available for purchase on all music platforms with a portion of every purchase going to Rett research.
Rett syndrome (RTT) is a neurological disorder, found primarily in females. The girls progress normally up until about 12 to 18 months of age when the characteristics of Rett start to reveal themselves. All the social skills and motor skills they have obtained slowly cease to progress, starting a process of regression to what is the equivalent of living the rest of their life as an infant. They lose the use of their hands, and the ability to speak, and most are bound to a wheelchair. Parents and siblings become 24-hour caregivers, changing their lives forever as well…
Kevin Black
Kevin Black penned this song & produced the video with the same name to help raise awareness for the dreadful disorder that took the life of his daughter Cortney.
The song is available for purchase on all music platforms with a portion of every purchase going to Rett research.

Raising A Hand’s Dave Clements’ personal plea to encourage others to help him and singer-songwriter Kevin Black help fund a cure for Rett syndrome.

PSA video by Roger Earl, the founder of the rock band Foghat . Roger has a niece with Rett Syndrome and has agreed to come
The story behind Rett Syndrome is complicated. It involves a devastating genetic affliction that starts with young girls and includes incredible family dynamics, groundbreaking treatment,
IRSF’s Jennifer Endres interviews Dr. Walter Kaufmann regarding the recent update from the IGF-1 Clinical Trial.
By Jake Walker jake.walker@theeagle.com Hearing your child say “I love you” is a huge moment for parents, but those who have children with Rett syndrome
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