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About Rett Syndrome

As seen through the eyes of someone who knows
Rett syndrome (RTT) is a neurological disorder, found primarily in females. The girls progress normally up until about 12 to 18 months of age when the characteristics of Rett start to reveal themselves. All the social skills and motor skills they have obtained slowly cease to progress, starting a process of regression to what is the equivalent of living the rest of their life as an infant. They lose the use of their hands, and the ability to speak, and most are bound to a wheelchair. Parents and siblings become 24-hour caregivers, changing their lives forever as well…  Kevin Black
The Book / The Song

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Hands are raised in anger. Hands are raised in supplication. Hands are raised in salutation. But best, hands are raised in accountability. As in, ‘Count me in.’ Joining the throngs who support – whatever it is. In this case, those with Rett Syndrome. Those whose lives were cut short at an early age. Those whose potential could never be realized. Think of them, their families, and their friends. Lend a hand. A hand offered, raised or otherwise…

Ian AndersonBritish singer/songwriter (Jethro Tull)

There are so many good souls out there like Dave and Kevin and people want to know that. They want to hear about it. Everybody wants to know that that still exists in this world. I know it matters. If I didn’t think that, truly, [my world view] could ‘go dark’ real quick.

Tony ArataSongwriter who penned Garth Brooks’ “The Dance”

I see hands raised in appreciation and waving back and forth or holding a light– a happy and positive experience for all and a symbol of unity and undying love. Let us raise our hands together for those who have fallen from Rett syndrome and for those who now suffer and raise a positive example of our unified hope for a cure for Rett’s disease high up in the air–others will follow.

Mark FarnerGrand Funk

I’m just thrilled to death to know that my picture’s gonna be in the same book with Gene Simmons and Billy Gibbons!!… Hell, man. That’s cool!

Mark ChesnuttCountry Music Artist

I cannot imagine what it is like to watch your child suffer with something as difficult as Rett Syndrome. I can only do my best to help raise awareness and hopefully one day there will be a cure.

Pat GreenGrammy-nominated Texas Music Artist

Raise a hand and perhaps raise a voice. Join together in a volunteer effort to make someone else’s life a little better.

Michael GrimmWinner of NBC’s “America’s Got Talent

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The longest march started with a single step!

KEVIN BLACK . COM
Kevin Black penned this song & produced the video with the same name to help raise awareness for the dreadful disorder that took the life of his daughter Cortney.
The song is available for purchase on all music platforms with a portion of every purchase going to Rett research.

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Home

About Rett Syndrome

As seen through the eyes of someone who knows
Rett syndrome (RTT) is a neurological disorder, found primarily in females. The girls progress normally up until about 12 to 18 months of age when the characteristics of Rett start to reveal themselves. All the social skills and motor skills they have obtained slowly cease to progress, starting a process of regression to what is the equivalent of living the rest of their life as an infant. They lose the use of their hands, and the ability to speak, and most are bound to a wheelchair. Parents and siblings become 24-hour caregivers, changing their lives forever as well…  Kevin Black

The Book / The Song

The Book

Volume I

Volume II

Volume III

The Song

Galleries & Reviews

Artist's Comments

Hands are raised in anger. Hands are raised in supplication. Hands are raised in salutation. But best, hands are raised in accountability. As in, ‘Count me in.’ Joining the throngs who support – whatever it is. In this case, those with Rett Syndrome. Those whose lives were cut short at an early age. Those whose potential could never be realized. Think of them, their families, and their friends. Lend a hand. A hand offered, raised or otherwise…

Ian AndersonBritish singer/songwriter (Jethro Tull)

There are so many good souls out there like Dave and Kevin and people want to know that. They want to hear about it. Everybody wants to know that that still exists in this world. I know it matters. If I didn’t think that, truly, [my world view] could ‘go dark’ real quick.

Tony ArataSongwriter who penned Garth Brooks’ “The Dance”

I see hands raised in appreciation and waving back and forth or holding a light– a happy and positive experience for all and a symbol of unity and undying love. Let us raise our hands together for those who have fallen from Rett syndrome and for those who now suffer and raise a positive example of our unified hope for a cure for Rett’s disease high up in the air–others will follow.

Mark FarnerGrand Funk

I’m just thrilled to death to know that my picture’s gonna be in the same book with Gene Simmons and Billy Gibbons!!… Hell, man. That’s cool!

Mark ChesnuttCountry Music Artist

I cannot imagine what it is like to watch your child suffer with something as difficult as Rett Syndrome. I can only do my best to help raise awareness and hopefully one day there will be a cure.

Pat GreenGrammy-nominated Texas Music Artist

Raise a hand and perhaps raise a voice. Join together in a volunteer effort to make someone else’s life a little better.

Michael GrimmWinner of NBC’s “America’s Got Talent

Previous

Next

Photo Galleries

From All Of The Three Volumes

Videos

See What People Are Saying!

Reviews

Read What People Are Saying!

Our Mission

Why a Book

Two Dads

News & Press

News

Media Kit

The FAQs

Share Our Site with Friends and Family.
The longest march started with a single step!

KEVIN BLACK . COM

Kevin Black penned this song & produced the video with the same name to help raise awareness for the dreadful disorder that took the life of his daughter Cortney.
The song is available for purchase on all music platforms with a portion of every purchase going to Rett research.

Get or Use a Spotify Account

Amazon

YouTube Music

Apple Music

Cart

News

Dave’s Video

Raising A Hand’s Dave Clements’ personal plea to encourage others to help him and singer-songwriter Kevin Black help fund a

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Sara’s Video

Sara Clements Wright, daughter of Dave Clements supports her Dad and Kevin Black’s fight against Rett syndrome in this moving

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Laylee’s Video

Raising a Hand is a nonprofit organization that has created a photography book to help fund the research needed to

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From raising a camera to ‘raising a hand’ for Rett

By Maggie Gutierrez / Art Talk A camera and a request for an autograph from well-known and widely published area

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Dave Clements: Rodeo photographer, Rett crusader

By Claudia Feldman of the Houston Chronicle For the month of March, freelance photographer Dave Clements roams the Houston Livestock

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Part 1: David Clements on Business Newsmakers Radio

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Part 2: David Clements on Business Newsmakers Radio

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Rett: There is Hope

The story behind Rett Syndrome is complicated. It involves a devastating genetic affliction that starts with young girls and includes

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Rett Syndrome: Clint Black PSA

Country Music Legend Clint Black and Jeffrey L. Neul, M.D., Ph.D., Baylor College of Medicine, and Paige Nues, International Rett

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Research to Reality Campaign

Rettsyndrome.org is wholly committed to the work these scientists are doing to find treatments and a cure for Rett. In

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